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DON'T IGNORE THESE POTS SYMPTOMS: MISDIAGNOSED CASES

Updated: Feb 20















Have you ever experienced a sudden increase in heart rate when standing up? Or perhaps dizziness, lightheadedness, and fatigue that seem to come out of nowhere? If so, you may be one of the millions worldwide suffering from POTS - Postural Orthostatic Tachycardia Syndrome. In this blog post, we'll dive into the commonly misdiagnosed cases of POTS and why it's essential not to ignore the symptoms. So buckle up and get ready to learn more about this complex condition that affects far more people than we realize.

POTS, or Postural Orthostatic Tachycardia Syndrome, is a complex and often misunderstood condition that affects an estimated 1 to 3 million Americans. It is characterized by a rapid increase in heart rate upon standing, along with a range of other symptoms such as dizziness, fatigue, and brain fog. Unfortunately, due to its varied and non-specific symptoms, POTS is often misdiagnosed or overlooked, causing many sufferers to go undiagnosed or receive an incorrect diagnosis. In this blog post, we will explore the common misdiagnosed cases of POTS and why it is important not to ignore these symptoms.

POTS is often triggered after a viral illness, major surgery, trauma, or pregnancy.  It is viewed as an autoimmune condition.  Even cardiologists are missing it because the EKG and Holter monitor tests they do usually show normal. POTS is essentially a dysfunction in the ANS, Autonomic Nervous System.

When the ANS (autonomic nervous system) has perceived a stressor (often from one of these: viral/bacterial illness, major surgery, trauma, pregnancy) that has indicated it is not safe, and now the systems are not working in harmony, essentially and may have become an autoimmune response.


What you may see:


It is VERY disconcerting for the person feeling it, and they are often medically dismissed. There may be blood pressure drops, heart rate spikes, and many other symptoms, as illustrated below: 



A test that can be done at home MAY point to a diagnosis:


  1. Sit or lay down for 10 minutes and take your Blood Pressure and Heart Rate.  Have someone write it down.

  2. Then Stand and immediately retake your BP & HR.  Write it down.

  3. Then, test again at 2 minutes and 5 minutes.

  4. If your Heart rate spikes around 25-30 points upon standing or your blood pressure drops, POTS could be part of the problem.



Using a table-tilt test for more answers:


You'll need to ask for a Tilt-Table test for more diagnosis.  However, diagnosis will not solve this. Look instead for resources around a POTS exercise program.  Proper anti-inflammatory diet. Balancing increased water and adding salt to water or salt tablets.  You should work with a provider who knows how to support not only the physiology but the nervous system aspect as well.


Overlooked Symptoms of POTS and the Importance of Diagnosis:


Early diagnosis of POTS is essential for several reasons. First, it allows for appropriate treatment and management strategies to be implemented. With the right interventions, such as lifestyle modifications, medications, and physical therapy, symptoms can be minimized, and individuals with POTS can experience improved functionality.

Secondly, early diagnosis helps to validate and provide relief for patients who have often spent years searching for answers to their symptoms. POTS is often an invisible illness, meaning that individuals may appear healthy on the outside, making it difficult for others to understand or empathize with their struggles. By receiving a diagnosis, patients can gain validation for their experiences and connect with a community of others who understand what they are going through.

Lastly, early diagnosis helps to prevent further complications and health risks. Untreated POTS can lead to a decrease in overall cardiovascular health, reduced blood volume, and increased risk of blood clots. By recognizing and treating POTS, these potential complications can be avoided.


Misconceptions About POTS and its Symptoms:


POTS, or Postural Orthostatic Tachycardia Syndrome, is a condition that is often plagued by misconceptions and misunderstandings. One common misconception is that POTS only affects the heart. While the rapid increase in heart rate upon standing is a defining characteristic of POTS, this condition can have a widespread impact on the body. Symptoms such as dizziness, fatigue, brain fog, and gastrointestinal issues are just a few examples of the many ways that POTS can manifest.

Another misconception is that POTS is a rare condition that only affects a small number of individuals. In reality, POTS is estimated to affect anywhere from 1 to 3 million Americans. It is more common in women, but it can occur in anyone regardless of age or gender.

Additionally, there is often a misunderstanding that POTS is just a form of anxiety or panic disorder. While anxiety can be a symptom of POTS, it is not the cause. POTS is a physiological condition that involves dysfunction in the autonomic nervous system, which controls functions such as heart rate and blood pressure. By dismissing POTS as solely an anxiety-related issue, individuals may not receive the proper diagnosis and treatment they need.

It is important to address these misconceptions and educate both the general public and healthcare professionals about the true nature of POTS. By doing so, we can ensure that individuals with POTS receive the recognition, support, and appropriate treatment they deserve.


How to Advocate for Yourself or a Loved One With Potential POTS:


If you or a loved one suspect that you may have POTS, it is important to advocate for yourself and take an active role in seeking a proper diagnosis and treatment. Here are some steps you can take to advocate for yourself or your loved one with potential POTS.

1. Educate yourself: Learn as much as you can about POTS, its symptoms, and the diagnostic process. Understanding the condition and its impact will help you communicate effectively with healthcare professionals.

2. Keep a symptom journal: Track your symptoms, including when they occur and their severity. This information can provide valuable insights for healthcare professionals and help support your case for further evaluation.

3. Find a knowledgeable healthcare professional: Seek out a healthcare provider who has experience and knowledge in diagnosing and treating POTS. You may need to do some research or get referrals from other POTS patients to find the right doctor.

4. Be your own advocate: Be proactive in your healthcare journey. Clearly communicate your concerns, symptoms, and any relevant information to your healthcare provider. Don't be afraid to ask questions and advocate for further testing or referrals to specialists if needed.

5. Seek support: Connect with other individuals who have POTS through online support groups or local support networks. Sharing experiences, tips, and resources can provide valuable support and guidance throughout your journey.

Remember, you are your own best advocate. By staying informed, communicating effectively, and seeking appropriate care, you can increase your chances of receiving a proper diagnosis and finding the treatment that works best for you.

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